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Retina UK

Retina UK

Retina UK supports people affected by inherited progressive sight loss and invests in medical research to ensure that people an lead a fulfilling life, now and in the future.

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  • 39 episodes
  • Avg 33 min
  • English
Counted on this page — what you have heard stays on this device, so it is not something the list can be paged by.
  • October 23 · 59 min

    Webinar: protecting your remaining vision: eye health, low vision support and practical advice

    Many people with inherited retinal dystrophies (IRDs) ask what they can do to protect their remaining vision and maintain good eye health. In this informative webinar, we'll explore practical steps you can take to support your sight and make the most of the vision you have. Led by Louise Gow, Head of Eye Health, Optometry and Low Vision at the RNIB, this session will cover the importance of regular eye examinations and hospital appointments, recognising changes in your vision, and understanding when and where to seek help. We’ll also discuss low vision adaptations, reducing glare, choosing suitable glasses and glare shields, UV protection, eye safety, and wider lifestyle factors that support overall eye health. Whether you’re newly diagnosed or have been living with sight loss for many years, this webinar will provide practical advice and information to help you feel confident in managing your eye health. Topics covered: - Why regular eye tests and hospital appointments matter - Recognising changes in vision and red flag symptoms - When and where to seek help - Low vision adaptations and support - Managing glare and choosing appropriate glare shields - UV protection and eye safety - Healthy lifestyle choices that support eye health - Making the most of your remaining vision

  • October 16 · 37 min

    Podcast: The Blind Stylist: Tilly Dowler on fashion, confidence and living with stargardt disease

    In this episode of the Retina UK Podcast, we sit down with Tilly Dowler, known to many on social media as @the_blind_stylist. Living with stargardt disease, Tilly uses her platforms to share honest insights into life with sight loss while challenging common misconceptions about visual impairment. We discuss her diagnosis, her journey to becoming more confident about her sight loss, and how she built a supportive online community through social media. Tilly also shares her passion for fashion and beauty, offering practical advice for maintaining personal style, applying makeup, and building confidence after sight loss. The conversation explores her career journey, from running her own boutique to launching a new online styling service, as well as the importance of disability representation in the fashion and beauty industries.

  • September 23 · 46 min

    Annual Conference 2026 - From innovation to independence: assistive technology for inherited sight loss

    Our panel of experts share their professional and personal experience to bridge the gap between cutting-edge innovation, including AI, and everyday reality. Barrie Lane, Tech Advisor at Beacon Centre. Keith Dear, Tech Advisor at Sight for Surrey. Mark Baxter, Information and Support Coordinator, Retina UK. Anna Holloway and Ellie Dowdy, Retina UK Tech Peer Support Group volunteers.

  • September 23 · 49 min

    Professionals' Conference 2026 - From innovation to independence: assistive technology for inherited sight loss

    Our panel of experts share their professional and personal experience to bridge the gap between cutting-edge innovation, including AI, and everyday reality. Barrie Lane, Tech Advisor at Beacon Centre. Keith Dear, Tech Advisor at Sight for Surrey. Mark Baxter, Information and Support Coordinator, Retina UK. Anna Holloway and Ellie Dowdy, Retina UK Tech Peer Support Group volunteers.

  • September 8 · 27 min

    Programme - Annual Conference 2026

    More information about our Annual Conference 2026 can be found on our website: ⁠RetinaUK.org.uk/event/annual-conference/

  • August 26 · 59 min

    Look Forward - Autumn 2026 (issue 191)

    This is the audio edition of the Retina UK Newsletter, Look Forward - Autumn 2026 (Issue 191). You can download a copy in PDF and Word format on the Retina UK website: ⁠⁠https://retinauk.org.uk/resources⁠⁠. Contents in this edition are as follows: We're counting the days until our conferences Free CPD-accredited conference for professionals Retina UK Annual Conference Nutrition and inherited sight loss, promise vs proof Thank you Challenge yourself, change lives Research news round-up Volunteering, technology and community: Making a difference at Retina UK Bringing us closer to effective treatments Living life in full colour: Meet Tilly Dowler Dates for your diary PAID ADVERTISEMENT: Turn night into day - Luna PAID ADVERTISEMENT: Ran-Ban | Meta Wayfarer Donate to Retina UK this autumn

Showing 1–20 of 39 episodes