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Epilepsy Sparks Insights

Torie Robinson

Sparking interest and understanding in the epilepsies whilst bridging the communication gap between epilepsy patients, clinicians, scientists, geneticists – and the world. Hosted by Torie Robinson.
**NOT FOR CLINICAL OR PATIENT DECISION-MAKING*
Visit www.torierobinson.com & www.epilepsysparks.com.

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  • 26 episodes
  • weekly
  • Avg 21 min
  • English
Counted on this page — what you have heard stays on this device, so it is not something the list can be paged by.
  • #279
    Yesterday · 28 min

    The Epilepsy Risks Nobody Used to Talk About - Prof. Torbjörn Tomson

    Epilepsy care has come a long way - from safer pregnancies and advances in genetics to better understanding the risks of epilepsy, including SUDEP. But why are some risks still not openly discussed, and could we one day prevent epilepsy rather than simply control seizures? Hear from leading epilepsy researcher Prof. Torbjörn Tomson on this week's podcast. This episode is sponsored by the Drug-Resistant Epilepsy Course organised by the Spanish Epilepsy Society - supporting education and public understanding of epilepsy. Chapters 📖 00:00 Trailer & intro 01:25 Meet Torbjörn Tomson 03:26 Discoveries from epilepsy research 05:55 Pregnancy in women with an epilepsy - history 08:06 Fear and risk of fetal abnormalities - a reduction 09:50 Benefits of epilepsy pregnancy registers 11:54 The valproate debacle - positive changes 15:26 SUDEP history, education, and risk reduction 23:15 Other risks to minimise 25:23 Shared decision-making (clinician and person with an epilepsy/carer) 25:48 Hopes for the future: anti-epileptogenic treatments 27:37 Closing thoughts and thanks 🔗 Episode page and transcript epilepsysparks.com/epilepsy-sparks-insights/progress-history-epilepsy-care 🌐 More about Torbjörn epilepsysparks.com/guests/torbjorn-tomson 🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights 🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights 🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary 📲 Join us on social media! 〰️ LinkedIn epilepsy-sparks 〰️ Instagram epilepsysparks 〰️ Facebook epilepsysparks 〰️ TikTok epilepsysparks 〰️ Bluesky epilepsysparks​

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  • #278
    October 22 · 31 min

    Epilepsy Care: When Treatment Isn't Working - Prof. Bernhard Steinhoff

    Good epilepsy care isn't about pills - it's about prevention, care, prescribing the right treatment, at the right time, for the right person. It’s about understanding each individual, their specific needs, and looking beyond seizure control. Hear more from Epileptologist Prof. Bernhard Steinhoff on this week’s podcast. This episode is sponsored by the Drug-Resistant Epilepsy Course organised by the Spanish Epilepsy Society - supporting education and public understanding of epilepsy. Chapters 📖 00:00 Trailer & intro 01:34 Meet Bernhard Steinhoff 02:04 What is great epilepsy care? 03:20 Using the right medications 06:39 Capacity of neurolgoists 09:11 Sleep, alcohol, driving, and bathing 12:44 Talking about SUDEP 15:40 When people don’t know they’ve seized 17:41 When you find out you don’t have an epilepsy 18:46 Therapeutic nihilism 21:27 Strategy: new medications and side effects 24:02 Epilepsy surgery 26:03 Precision medicine for children and in DEEs 27:15 Increasing number of older people with an epilepsy: the future 30:01 Hope: never give up 30:33 Closing thoughts and thanks 🔗 Episode page and transcript epilepsysparks.com/epilepsy-sparks-insights/treatment-strategy-specialist-epilepsy-care 🌐 More about Bernhard epilepsysparks.com/guests/bernhard-steinhoff 🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights 🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights 🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary 📲 Join us on social media! 〰️ LinkedIn epilepsy-sparks 〰️ Instagram epilepsysparks 〰️ Facebook epilepsysparks 〰️ TikTok epilepsysparks 〰️ Bluesky epilepsysparks​

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  • #277
    October 15 · 35 min

    Developing Epilepsy When You're Older - What That Means - Dr. Manuel Toledo

    What’s it like to have/develop an epilepsy when you’re 65+ years? Epileptologist Dr. Manuel Toledo shares how commonly this age group is affected, the differences and challenges in having an epilepsy at an older age, what the priorities are, how medication effectiveness can vary, and so much more! Tune in to learn more. This episode is sponsored by the Drug-Resistant Epilepsy Course organised by the Spanish Epilepsy Society - supporting education and public understanding of epilepsy. Chapters 📖 00:00 Trailer & intro 01:32 Meet Manuel Toledo 03:14 Epilepsy in people 65+ years 04:36 Why is epilepsy so common in older people? 07:07 Common challenges of having an epilepsy when 65+ years 09:18 A fragile population 10:25 Stigma in this age group 15:04 Cognitive impairment and dementia 18:53 Epileptic seizures - or not? 22:01 Serious events missed if misdiagnosed with an epilepsy 26:05 Day to day awareness: things to know 32:33 Future impacts of research into epilepsy in older people 35:02 Closing thoughts and thanks 🔗 Episode page and transcript epilepsysparks.com/epilepsy-sparks-insights/older-people 🌐 More about Manuel epilepsysparks.com/guests/manuel-toledo 🎧 Manuel's episode on travelling with an epilepsy: https://share.transistor.fm/s/4ddd368c 🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights 🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights 🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary 📲 Join us on social media! 〰️ LinkedIn epilepsy-sparks 〰️ Instagram epilepsysparks 〰️ Facebook epilepsysparks 〰️ TikTok epilepsysparks 〰️ Bluesky epilepsysparks​

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  • #276
    October 8 · 16 min

    Using a Phone App To Diagnose Epilepsy - from Thousands of Miles Away - Dr. Victor Patterson

    How can we improve access to epilepsy diagnoses around the world? Neurologist Dr. Victor Patterson shares with us how telemedicine and simple apps, AI, and machine learning can bring epilepsy expertise to people wherever they live - and make a huge difference to millions of lives! Chapters 📖 00:00 Trailer & intro 01:19 Meet Victor Patterson 02:00 What is telemedicine and how did it start? 05:03 Using an app to diagnose epilepsy 09:13 More generalised than focal seizures in low-middle income countries 10:17 Machine learning in epilepsy diagnoses 11:03 Inaccuracies in diagnosis - what then? 12:26 Let’s take action! 12:58 Diagnoses aren’t always complex 14:54 AI and the future in medicine 16:03 Closing thoughts and thanks 🔗 Episode page and transcript epilepsysparks.com/epilepsy-sparks-insights/telemedicine-ai-machine-learning-lmic 🌐 More about Victor epilepsysparks.com/guests/victor-patterson 🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights 🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights 🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary 📲 Join us on social media! 〰️ LinkedIn epilepsy-sparks 〰️ Instagram epilepsysparks 〰️ Facebook epilepsysparks 〰️ TikTok epilepsysparks 〰️ Bluesky epilepsysparks​

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  • #274
    October 1 · 13 min

    Who Doesn't Get Treatment for their Epilepsy? - Dr. Jonathan Williams

    Why don’t we all have the same access to and quality of epilepsy treatment and care? We all deserve the best, no matter what makes us different. Today we hear from neurologist & epileptologist Dr. Jonathan Williams about these needs, health equity, and how we can satisfy them - through working together and addressing stigma. Chapters 📖 00:00 Trailer & intro 00:45 Meet Jonathan Wlliams 01:04 What is health equity? 02:36 The invisible things that affect health 03:48 Why is health equity important? 05:59 What are the societal costs of epilepsy? 06:52 Why should people without an epilepsy care? 08:42 Employment and driving 10:14 Next steps: education & challenging stigma 13:11 Closing thoughts and thanks 🔗 Episode page and transcript epilepsysparks.com/epilepsy-sparks-insights/health-equity-disparities 🌐 More about Jonathan epilepsysparks.com/guests/jonathan-williams 🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights 🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights 🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary 📲 Join us on social media! 〰️ LinkedIn epilepsy-sparks 〰️ Instagram epilepsysparks 〰️ Facebook epilepsysparks 〰️ TikTok epilepsysparks 〰️ Bluesky epilepsysparks​

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  • #275
    September 24 · 17 min

    Epilepsy Impacting Cognition? - Dr. Jake Pellinen

    Does epilepsy impact cognition? Could it be seizures, medications - or something that happened right at the beginning - even before seizures started? Hear all about it from epileptologist Dr. Jacob Pellinen who speaks of exciting answers - and questions - from the Human Epilepsy Project. Chapters 📖 00:00 Trailer & intro 01:07 Meet Jacob Pellinen 01:17 Cognitive testing: The Human Epilepsy Project 05:01 Types of cognitive testing used 07:08 Results: cognition and epilepsy 08:34 What might be causing the cognitive problems? 09:44 Clinicians must take a holistic approach in care 11:36 Cognitive issues with other causes 12:27 Depression doesn’t cause epilepsy! 13:51 Cognitive challenges must be addressed with all other symptoms 15:14 Terrible experience - what a clinician should not do! 15:56 Appointments: topic could be depression or memory - not just seizures 16:37 Closing thoughts and thanks 🔗 Episode page and transcript epilepsysparks.com/epilepsy-sparks-insights/cognition-memory-attention-perception-metacognition-language 🌐 More about Jacob epilepsysparks.com/guests/jacob-pellinen 🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights 🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights 🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary 📲 Join us on social media! 〰️ LinkedIn epilepsy-sparks 〰️ Instagram epilepsysparks 〰️ Facebook epilepsysparks 〰️ TikTok epilepsysparks 〰️ Bluesky epilepsysparks​

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  • #273
    September 17 · 19 min

    New Types of Epilepsy Surgery - Prof. Sarat Chandra

    What are some newer types of epilepsy surgery? Today we hear about the new version called Robotic Thermocoagulative Hemispherotomy - for which you need a plaster! Also, what defines epilepsy surgery success? It isn't always just seizure reduction or freedom. Hear all about it from epilepsy surgeon Prof. Sarat Chandra. Chapters 📖 00:00 Trailer & intro 01:19 Different epilepsy surgery techniques 03:26 Endoscopic hemispherectomy 07:11 Measuring the success of epilepsy surgery 09:04 Improvements in mood 09:44 Managing expectations 11:03 Robotic Thermocoagulative Hemispherotomy 17:02 Future use of lasers and radiofrequency 18:14 The monetary price of Robotic Thermocoagulative Hemispherotomies 19:06 Closing thoughts and thanks 🔗 Episode page and transcript epilepsy-sparks-insights/radio-frequency-robotic-thermocoagulative-hemispherotomy 🌐 More about Sarat epilepsysparks.com/guests/sarat-chandra 🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights 🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights 🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary 📲 Join us on social media! 〰️ LinkedIn epilepsy-sparks 〰️ Instagram epilepsysparks 〰️ Facebook epilepsysparks 〰️ TikTok epilepsysparks 〰️ Bluesky epilepsysparks​

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  • #272
    September 3 · 19 min

    Reasons To Have Epilepsy Surgery - Prof. Sarat Chandra

    Lots of people are very scared of epilepsy surgery. What are the risks of having it? What are the risks of not having it? Potential benefits? The processes beforehand? Hear all about it from epilepsy surgeon Prof. Sarat Chandra!. Chapters 📖 00:00 Trailer & intro 01:02 Meet Sarat Chandra 01:55 Reasons to get epilepsy surgery 05:03 Different types of epilepsy surgery 08:19 Fear, full investigations, and consent for epilepsy surgery 11:38 Example: Stereoelectroencephalography 14:15 Measuring success of an epilepsy surgery and “The burden of normality” 16:18 Considering memory 18:49 Closing thoughts & thanks 🔗 Episode page and transcript epilepsy-sparks-insights/neurosurgery-risks-benefits-memory 🌐 More about Sarat epilepsysparks.com/guests/sarat-chandra 🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights 🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights 🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary 📲 Join us on social media! 〰️ LinkedIn epilepsy-sparks 〰️ Instagram epilepsysparks 〰️ Facebook epilepsysparks 〰️ TikTok epilepsysparks 〰️ Bluesky epilepsysparks​

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  • #271
    July 30 · 19 min

    Still Having Seizures? Don't Just Accept It - Dr. Manjari Tripathi

    With neurologist Dr. Manjari Tripathi we hear about the complex world of epilepsy management, focusing on how treatments go beyond medications - including lifestyle changes and innovative surgical options! Join Manjari as she demystifies epilepsy treatments, preventative measures, quality of life, and looking at epilepsy surgery. Chapters 📖 00:00 Trailer & intro 01:03 Meet Manjari Tripathi 01:39 Epilepsy Is More Than Seizure Control: Daily Life, Stigma, and Mental Health 03:38 Diagnosing Epilepsy: Clinical History, EEG, Imaging, and Finding the Cause 05:27 Before Calling Epilepsy Drug-Resistant: Medication Adherence, Lifestyle, and Assessment 08:20 Why Early Referral Matters and How Patients Reach Epilepsy Surgery 11:01 Who Can Have Surgery? Ketogenic Therapy, Yoga, and Other Options When Surgery Isn’t Suitable 14:40 Improving Quality of Life: Exercise, Mental Health, Emotional Support, Family Communication, and Community Inclusion 18:25 Closing thoughts & thanks 🔗 Episode page and transcript epilepsysparks.com/epilepsy-sparks-insights/diagnosis-treatment-mental-health-surgery-yoga 🌐 More about Manjari epilepsysparks.com/guests/manjari-tripathi 🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights 🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights 🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary 📲 Join us on social media! 〰️ LinkedIn epilepsy-sparks 〰️ Instagram epilepsysparks 〰️ Facebook epilepsysparks 〰️ TikTok epilepsysparks 〰️ Bluesky epilepsysparks​

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  • #270
    July 23 · 18 min

    Why Don't Antiseizure Medications Work for Everyone? - Graeme Sills, PhD

    Why do around 30% of people with epilepsy still have uncontrolled seizures despite decades of new antiseizure medications? Graeme Sills, PhD, explains the leading theories behind drug resistance - and how a better understanding of the brain could transform future epilepsy treatments. Chapters 📖 00:00 Trailer & intro 00:45 Meet Graeme Sills 01:29 Introduction to pharmacology and epilepsy 02:17 Challenges in epilepsy reatment 06:30 Why the drugs don’t work: the drug-transporter hypothesis 08:38 Why the drugs don’t work: the network hypothesis 09:31 Why the drugs don’t work: the severity and genetic hypothesis 10:06 Future directions in epilepsy research 13:08 Innovative approaches to research and treatment? 17:58 Closing thoughts & thanks 🔗 Episode page and transcript epilepsysparks.com/epilepsy-sparks-insights/pharmacology-past-present-future 🌐 More about Graeme epilepsysparks.com/guests/graeme-sills 🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights 🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights 🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary 📲 Join us on social media! 〰️ LinkedIn epilepsy-sparks 〰️ Instagram epilepsysparks 〰️ Facebook epilepsysparks 〰️ TikTok epilepsysparks 〰️ Bluesky epilepsysparks​

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  • #269
    July 16 · 19 min

    The Brain Implant That May Do More Than Reduce Seizures: RNS - Dr. Vikram Rao

    Could a brain implant do more than reduce seizures? Dr. Vikram Rao explains how responsive neurostimulation (RNS) is changing the treatment of epilepsy, why researchers think it may work differently than first imagined, and how the technology is helping us learn more about the brain than ever before. Could it even help treat conditions beyond epilepsy in the future? Chapters 📖 00:00 Trailer & intro 01:07 Meet Dr. Vikram Rao 02:01 What is RNS (Responsive Neurostimulation)? 03:38 Surgery length and battery replacement 04:21 Who’s suitable for RNS? 05:12 Where RNS wires are placed 06:53 RNS: a preventative approach? 09:50 RNS data recording benefits 12:11 Suitable for focal or generalised epilepsy? 12:59 Benefits for DEEs, treatment resistant depression, and OCD? 15:15 More information 15:55 Safety and further development of RNS 18:19 Closing thoughts & thanks 🔗 Episode page and transcript epilepsysparks.com/epilepsy-sparks-insights/rns-responsive-neurostimulation 🌐 More about Vikrkam epilepsysparks.com/guests/vikram-rao 🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights 🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights 🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary 📲 Join us on social media! 〰️ LinkedIn epilepsy-sparks 〰️ Instagram epilepsysparks 〰️ Facebook epilepsysparks 〰️ TikTok epilepsysparks 〰️ Bluesky epilepsysparks​

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  • #268
    July 9 · 15 min

    Just a Few Brain Cells Can Cause Epilepsy: Mosaicism - Dr. Stéphanie Baulac

    Most people think every cell in their body contains exactly the same DNA. It turns out that's not always true. Epilepsy genetics researcher Dr. Stéphanie Baulac explains mosaicism, how tiny genetic mutations can exist in just a small number of brain cells, and why they can cause a type of epilepsy called focal cortical dysplasia (FCD). These discoveries are transforming our understanding of epilepsy and could pave the way for highly targeted treatments in the future. Chapters 📖 00:00 Trailer & intro 00:55 Meet Dr. Stéphanie Baulac 01:12 What is focal cortical dysplasia? 02:33 Are these genetic mutations inherited? 04:17 How can so few cells cause seizures? 07:12 What is mosaicism? 09:26 What does this mean for families? 10:03 What is precision medicine? 10:04 Can treatments target only the affected brain cells? 12:49 Why were these mutations only discovered recently? 14:23 How are these mutations detected? 15:09 Closing thoughts & thanks 🔗 Episode page and transcript epilepsysparks.com/epilepsy-sparks-insights/fcd-mosaicism-somatic 🌐 More about Stéphanie epilepsysparks.com/guests/stephanie-baulac 🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights 🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights 🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary 📲 Join us on social media! 〰️ LinkedIn epilepsy-sparks 〰️ Instagram epilepsysparks 〰️ Facebook epilepsysparks 〰️ TikTok epilepsysparks 〰️ Bluesky epilepsysparks​

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  • #267
    July 2 · 16 min

    Is A Blood Brain Barrier Leak Causing Seizures? - Dr. Colin Doherty

    Could inflammation and the blood-brain barrier help explain why some seizures remain uncontrolled? Prof. Colin Doherty discusses emerging research into immune activity in epilepsy, how steroids may temporarily improve seizure control, and why future immunotherapies could help some people whose seizures do not respond to current treatments. Chapters 📖 00:00 Trailer & intro 00:31 Precision therapy for autoimmune diseases 01:27 Hypothesis: could steroids prevent seizures through mending the leakage of the Blood Brain Barrier? 03:53 Neurologists and researchers need to think about autoimmune 04:57 Blood Brain Barrier, steroids and genetics - current study 07:01 History: why haven’t we done this research already? 08:13 Immunologists: work with us! 09:48 Comparison: cancer and immunology 12:08 Clinicians and scientists: work with us! 13:51 People with an epilepsy and carers: work with us! 15:27 Closing thoughts & thanks 🔗 Episode page and transcript epilepsy-sparks-insights/autoimmune-therapy-blood-brain-barrier 🌐 More about Colin epilepsysparks.com/guests/colin-doherty 🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights 🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights 🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary 📲 Join us on social media! 〰️ LinkedIn epilepsy-sparks 〰️ Instagram epilepsysparks 〰️ Facebook epilepsysparks 〰️ TikTok epilepsysparks 〰️ Bluesky epilepsysparks​

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  • #266
    June 25 · 15 min

    Could Immunotherapy Could Control Seizures? - Prof. Colin Doherty

    Could the immune system play a bigger role in epilepsy than many of us realise? Prof. Colin Doherty explains how autoimmune epilepsies challenged the traditional view of epilepsy as purely an electrical disorder. He also discusses antibody-negative autoimmune epilepsy, early immunotherapy studies, and why some people with highly refractory epilepsy may respond to steroid treatment. Chapters 📖 00:00 Trailer & intro 00:44 Not just an “electrical disorder” 02:19 30% still don’t have seizure control 03:06 Epilepsy surgery 04:54 Immunotherapy for epilepsy 06:28 Immunotherapy cases 10:20 Needing an immunotherapy program 12:10 Steroids and profit 13:16 Impacts of steroids - safety 14:55 Closing thoughts & thanks 🔗 Episode page and transcript epilepsy-sparks-insights/autoimmune-therapy 🌐 More about Colin epilepsysparks.com/guests/colin-doherty Episode mentioned: 🌐 Neurologist Diagnosed With Epilepsy - You'll Love His Positivity - Dr Jim Morrow 🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights 🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights 🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary 📲 Join us on social media! 〰️ LinkedIn epilepsy-sparks 〰️ Instagram epilepsysparks 〰️ Facebook epilepsysparks 〰️ TikTok epilepsysparks 〰️ Bluesky epilepsysparks​

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  • #265
    June 18 · 24 min

    Can Ketogenic Therapy Help More Than Seizures? - Dr. Manny Bagary

    Could medical ketogenic therapy improve more than seizures?! Like anxiety and depression? Dr. Manny Bagary shares how clinciains assess whether ketogenic therapy is working, including its potential effects on anxiety, mood, cognition and quality of life. He also talks about common misconceptions, cholesterol worries, potential pregnancies, and why so many adults with epilepsy still struggle to access specialist ketogenic therapy services. This is episode 2 of 2 with Manny. This episode is sponsored by Kanso, a brand by Dr. Schär, who had no influence over the editorial content or discussion. Learn more about Kanso here: kanso.com/en Chapters 📖 00:00 Trailer & intro 01:50 When do you know if the ketogenic diet isn’t working? 03:40 Impact on quality of life - anxiety, depression, cognition 05:45 Misinformation regarding medical ketogenic therapy 08:44 Feeling full 09:55 When the diet isn’t safe 12:20 Secondary benefits of keto diet 14:08 Bipolar disorder and the diet 14:53 Cholesterol - the elephant in the room 18:28 Lack of adult ketogenic diet treatment centres 23:19 Closing thoughts & thanks 🔗 Episode page and transcript epilepsysparks.com/epilepsy-sparks-insights/efficacy-safety-mood-availability 🌐 More about Manny epilepsysparks.com/guests/manny-bagary 🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights 🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights 🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary 📲 Join us on social media! 〰️ LinkedIn epilepsy-sparks 〰️ Instagram epilepsysparks 〰️ Facebook epilepsysparks 〰️ TikTok epilepsysparks 〰️ Bluesky epilepsysparks

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  • #264
    June 15 · 23 min

    Ketones Are Changing Your Brain - Epilepsy! - Dr. Manny Bagary

    Medical Ketogenic Therapy can reduce seizures in some people - but how does it actually work?! Dr. Manny Bagary explains the nitty gritty of ketones, interactions, how they might affect brain excitability, what’s going on with neurotransmitters, mitochondria, inflammation, and even the gut microbiome! He also shares how ketogenic therapy might improve cognition, when a person should be offered it, and how it can help with status epilepticus! This is episode 1 of 2 with Manny. This episode is sponsored by Kanso, a brand by Dr. Schär, who had no influence over the editorial content or discussion. Learn more about Kanso here: kanso.com/en Chapters 📖 00:00 Trailer & intro 01:29 Meet Manny 02:03 What are ketogenesis, ketosis, ketone bodies, etc.? 04:17 What makes ketosis stop seizures (in some people)? 08:00 Impacts on anxiety, depression, cognition and more 09:42 Different types of ketogenic diet 13:17 Ketogenic therapy for status epilepticus 16:31 Ketogenic diet in adults 19:10 Forms of treatment - when does the ketogenic diet come in? 22:28 Closing thoughts & thanks 🔗 Episode page and transcript epilepsysparks.com/epilepsy-sparks-insights/ketones-anxiety-depression-status-epilepticus 🌐 More about Manny epilepsysparks.com/guests/manny-bagary 🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights 🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights 🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary 📲 Join us on social media! 〰️ LinkedIn epilepsy-sparks 〰️ Instagram epilepsysparks 〰️ Facebook epilepsysparks 〰️ TikTok epilepsysparks 〰️ Bluesky epilepsysparks

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  • #263
    June 4 · 33 min

    The Epilepsy Diet Most People Get Wrong - Keto - Dr. Neha Kaul

    Medical ketogenic therapy has more than 100 years of evidence behind it - so why is it still often treated as a last resort?! Ketogenic dietitian Neha Kaul explains how success can go beyond potential seizure reduction, and how the diet may affect cognition, mood and overall quality of life. Neha also covers common misconceptions, safety concerns, and what it really takes to make the diet work in everyday life. This episode is sponsored by Kanso, a brand by Dr. Schär and had no influence over the editorial content or discussion. Learn more about Kanso here: kanso.com/en Chapters 📖 00:00 Trailer & intro 01:38 Why is the ketogenic diet not widely used? 04:02 Research: supporting people trying the ketogenic diet 04:48 What is ketosis? 07:15 Other benefits of ketogenic diet 08:58 Ketogenic diet for adults - research 09:34 Who’s suitable for the diet? 12:37 Confusion re the diet 14:01 Who responds well to the diet? 15:32 Mistakes with the diet are normal 18:38 Safety concerns - cholesterol and nutrient deficiencies? 22:37 How much fat, protein, and carbs should be consumed? 23:39 Interactions with medications 25:32 Benefits vs trade-offs 27:47 Understanding personal barriers, support needed 29:36 Neurologists & those with an epilepsy: know this 32:34 Closing thoughts & thanks 🔗 Episode page and transcript epilepsysparks.com/epilepsy-sparks-insights/ketogenic-diet-support 📖 Jasper's Basics of Epilepsies: academic.oup.com/book/57972/chapter/476213922 🌐 More about Neha epilepsysparks.com/guests/neha-kaul 🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights 🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights 🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary Click here to view the episode transcript. 📲 Join us on social media! 〰️ LinkedIn epilepsy-sparks 〰️ Instagram epilepsysparks 〰️ Facebook epilepsysparks 〰️ TikTok epilepsysparks 〰️ Bluesky epilepsysparks

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  • #262
    May 28 · 14 min

    Focal Epilepsy Onset Later In Life - With Origins In Childhood - Dr. Jacob Pellinen

    Signs of focal epilepsy before the seizures start: hear all about it from neurologist and epileptologist Dr. Jacob Pellinen, who shares with us his research and results proving that people can experience things like depression or learning difficulties at school or work before seizure onset. Chapters 📖 00:00 Trailer & intro 00:44 Meet Jacob 02:34 Epilepsy is more than seizures 02:54 Later epilepsy diagnosis & The Human Epilepsy Project 03:05 “Later onset focal epilepsy with roots in childhood: Evidence from early learning difficulty and brain volumes in the Human Epilepsy Project” paper 07:29 Anticipating seizure onset 08:30 Improving recognition of seizure symptoms 09:02 Seizing for years before diagnosis 10:33 Learning difficulties not Intellectual Disability 13:18 Closing thoughts & thanks 🔗 Episode page and transcript epilepsysparks.com/epilepsy-sparks-insights/unrecognised-focal-onset-childhood 🌐 More about Jacob epilepsysparks.com/guests/jacob-pellinen 🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights 🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights 🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary 📲 Join us on social media! 〰️ LinkedIn epilepsy-sparks 〰️ Instagram epilepsysparks 〰️ Facebook epilepsysparks 〰️ TikTok epilepsysparks 〰️ Bluesky epilepsysparks

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  • #261
    May 21 · 17 min

    Can You Improve Memory In Epilepsy? - Dr. Laurie Miller

    Memory problems are one of the most common and frustrating symptoms experienced by people with an epilepsy - but what actually causes them? And how can we "treat" them? Dr. Laurie Miller explains how different types of memory work, why memory difficulties are often linked to the underlying brain pathology rather than just seizures, and what evidence-based strategies and techniquest may help improve everyday functioning. 👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights 🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider! 🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social

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